Mum's skin tears from writing and eating - then son's peeled off in bath

Jennifer Taylor, a 34-year-old from Prescot, Merseyside, lives with dystrophic epidermolysis bullosa (DEB), a rare genetic condition nicknamed 'butterfly skin' because the skin is extraordinarily fragile. The article notes DEB affects at least 5,000 people in the UK and details Taylor’s lifelong battles with blisters and skin tears from ordinary activities such as writing and walking. The devastation deepened when her son William, now four, inherited DEB and a bath caused the skin on his leg to peel away just one day before his newborn photoshoot. Doctors and researchers are highlighted as needing greater awareness and resources to support families like theirs.